Ready to go! ✈️

We were discharged from the hospital yesterday afternoon. We came back and spent the night at Amanda's. We are leaving for home today, our flight leaves in a couple of hours. We are more than ready to see Brian and to be back home! Please pray for safe and easy travels for all of us today, Brian will be picking us up at airport in Nashville. 

No surgery!

Thankful for God's amazing grace!!! No surgery!!! We will start a new medicine and stay the night to monitor and make sure he tolerates it ok. All the drs and surgeon discussed his case in their morning meeting and were on the fence about him. They came to the decision to start this medicine and hope to wait it out at least a year or so before we possibly replace the valve. 

Sam has already had a shower this morning and is riding around in the car. We are going down stairs in a few minutes to get him some chips and a sprite :) We are humbled and grateful by your love and prayers! 

Long day and still going...

Sam has been such a trooper today. We had to be here at 9:30 this morning and they did not take him back for his cath until 2:30. That's a long time to sit and be good in a little waiting room without being able to eat or drink! But Sam handled it as well as could be expected. The dr that performed the cath spoke with me after and just went over the general findings and information learned from today. Our cardiologist stopped by and simply said they will discuss his case in their morning meeting so the surgeon can discuss it with them. We won't know anything about surgery or no surgery until sometime tomorrow.
Sam is still having to lay flat, but should be able to sit up with the next hour or so. This is always the hardest part for him. He is laying in the bed eating chips, drinking sprite, and watching Snow White. We are so thankful for each of you that have prayed and continue to pray for Sam and our family. I will update you when I know more tomorrow. We are going to try to get some sleep soon....after the blood draw and going for X-ray lol!!!

Thankful for friends, new and old

We have had a great weekend! Sam and I are both worn out, but it was well worth it getting to enjoy our down time before we start the hard part tomorrow. Yesterday we went to the beach. Sam wanted to swim so bad, but the water here is freezing. We waded out a little ways and that suited him. He played in the sand and collected sea shells. When we got back to the house he played outside with his new little friend, Myles, that lives next door to Amanda. He ended the night playing Lego batman and watching Frozen. This morning we went for a walk around Deer Island, he loved seeing all the boats out on the water. He took a good afternoon nap and played outside again with Myles. He even got a little boat ride with Myles and his dad. We walked to eat dinner and he got in bed early. We are truly blessed with amazing friends to stay with, and with the new friendships we have made while here this week. We have to be at the hospital at 9:30 in the morning. Hopefully they will be running on schedule, but you never know. I will update tomorrow when he is done with the cath. It will probably be a quick update and will not have anymore details until later that night or the next morning. After his cath Sam has to lay flat for 4-6 hours. That is always a tough time at the beginning especially due to just coming out of anesthesia and in general feeling grumpy. Please be patient for info as I will be managing all of that on my own. I know you understand that Sam is my first priority. 

We are thankful for the love, support, and prayers we are receiving and benefitting from! Here are some pics from the weekend :)

Hurry Up and Wait!

This is the perfect title for our day.... There is a room that is the pre-op hub. You start there and go out for each service then go back to pre op hub and wait until it's time to go to your next service or meet with the next doctor.  We did X-ray, labs, EKG, echo, met with cath dr, met with cardiologist Dr. Marx, and all of these with several breaks between waiting makes for a long and tiring day. Sam was grumpy this morning until he saw Dr. Marx, who he absolutely loves. He perked right up and was so happy to see him. We also visited some of our favorite nurses and nurse practitioners on the cardiac floor. Sam also loved seeing all of them and gave lots of hugs and kisses.
We got back to the house around 4 this evening. We have just been playing with batman Legos and watching movies. We plan on going to bed early tonight. It is suppose to be beautiful this weekend, and I am excited to enjoy the great weather. Sam has to be back at the hospital at 9:30 Monday morning for his cath. We will have to wait for the results and go from there.
Have a great weekend!

We made it!

We had a good flight to Boston. Sam was great, played some and slept some. My friend Amanda picked us up at the airport. We have already had a play date with her little 3 year old neighbor, Myles. Now Sam is playing cars and planes with Amanda's husband, Chris. He will obviously love staying here! We have ordered pizza and will get to bed early tonight. We have to be at the hospital at 7:30 in the morning for appointments. I will update when we know times for the cath on Monday. Thank you for praying...definitely made a difference in our day!!