Home sweet home!

We are home safe and sound, exhausted, and excited! We made it in around 1 am, slept late, and had a lazy day. I ran to town to pick up some meds, and now Sam is napping, he's still off schedule. We have dr appt tomorrow to get flu shot and to get orders so we can restart therapy. Also have to buy some items so I can start the process of trying his new tube feedings of actual food. I am very excited about this! He will start his medicine to increase his appetite tomorrow night, and I am anxious to see how this changes things.
I will try to continue to update this website occasionally now that I can do it from my phone, I know not everyone that follows sam's story has Facebook. We can never thank you all enough for you love, support, and prayers!

Ready to be home!!!

We had a good day yesterday. Slept in late, Sam had an appt at 3:30, ate dinner at longhorn, packed, and called it a night :) The boys are still sleeping this morning! I am trying to get last minute stuff packed. Sam and I are meeting our fellow heart friend and mom, Georgiana and Angela, for lunch today. So excited to see them! We have an appt at 4 pm to meet with the nutritionist, and we have a flight home tonight leaving at 8pm!!!!!! I am beyond ready to be home! I want to sleep in my own bed, not have to walk 2 miles to get somewhere, see our friends and family, go to church, and for the first time since Sam has been born, be home to enjoy fall! :)
Thank you for your love and prayers! Here are some pictures from the Prouty Garden at children's hospital. Oh, and Sam munching on his cheeseburger at longhorn! :)