Time for an update!

It has been a looong time since I have posted here. We basically use this blog to keep everyone updated on Sam medically...so it is actually a good thing to not have to post in such a long time! We have had a great year (our last trip to Boston was September 2012 for a cath) and have enjoyed our time happy, healthy, and at home. Sam graduated therapy at the end of summer, and started preschool the beginning of September! He loves it and is learning so much. We had a cardiology appt in August in Louisville just as a checkup. My complaint was how tired he was all the time, and I wasn't sure if it was just summer again getting to him (the heat always makes him more tired) or if it was something different this time. Dr. Wright said we could wait a little and see if things improved with the weather change and schedule a cardiac MRI for sam's fall break. This is just the symptom of a leaky valve which we know he has and have just been monitoring. It didn't take long after school started for me to know for sure this wasn't just tired from summer heat. It didn't matter how early he went to bed, how long of a nap he took each day, he was constantly tired. Not just sleepy, but a fatigue type tired. After speaking to dr wright we moved his sedated MRI and echo up to the end of sept. Dr. Wright has sent the results to Boston and we are waiting to hear from them any day now. It is possible they will want to do surgery to replace the bad valve.  Sam's school schedule is Monday through Thursday for two and a half hours in the morn. We dropped to three days a week and are currently only going two days a week. That has seemed to really help him for now. So for now we are anxiously waiting to hear from our team of drs in Boston. We would love for you to start lifting Sam up in prayer. Your prayers are what carry us through times like this! Will update you as soon as we know something from Boston :)

Here is a recent pic from our church hayride :)

Happy Birthday to my sweet boy!

Sam will turn 3 tomorrow...it is unbelievable to me. We are going to celebrate with a party tonight with all his little friends. It gives me so much joy to be able to that this year. This is always such an emotional time for me for so many reasons...this time three years ago was such a whirlwind and full of twists, turns, and every emotion you can imagine. I can close my eyes and in a second be right back in time. I can distinctly remember so many details and the feelings I was having as that moment was taking place. And yet so many things are such a blur. Sometimes I forget how much he weighed when he was born, but I can remember doses of meds he was on the first weeks of his life. Words cannot express how thankful I am.... one of my favorite things is when Sam will sit in my lap at church facing me (one of the only times he is still enough to do this), and he will play with my hair or kiss my face, or just lay his head on my shoulder. It brings me to tears almost every time. I always think about how blessed we are to have him, what amazing works God has done in his life and through his life, how humble and grateful I am that I still get the privilege to hold him and feel his arms around me when so many friends will never have that opportunity on earth again. I pray to God that I never have to experience that.
I know he is mine and I am partial, but I think he is such an amazing child, such a sweet spirit about him and such a contagious smile. He is so easy to love...and I am so thankful for all of you that love him, pray for him, support us, and help take care of him.
All I know to say when I think about Sam, is that God has been good. We have and always will give Him all the praise and glory.
Happy Birthday!!!