Thursday, November 28, 2013

Thankful...

Today is Thanksgiving....and although we are not at home waiting to share a meal with our friends and family, we are thankful just the same. We are probably more aware of what we are truly thankful for on this cold day Boston. It is always wonderful to spend time with loved ones and eat way too much delicious food, but today I am thankful for much more important things. 
I am thankful for God's amazing grace and forgiveness that I do not deserve but He gives me everyday. 
I am thankful God chose me to be Sam's mommy.
I am thankful for my amazing best friend that is also my husband. 
I am thankful for the opportunity to be at Boston where Sam is recieving the best cardiac care available. 
I am thankful for all the friends and family and church families that have helped support us in any way and made this trip a possibility for us. 
I am thankful for familiar faces and friends here in Boston that make this trip so much more bearable....

Sam has had a good and quiet night. His numbers look great, and we will find out after rounds if it is a possibility to extubate later today. That will be the quickest we have ever done that if it happens today, and I cannot wait for my boy to wake up. In the icu I can only have my phone on when sitting in the back of the room, and I will spend most of the day by Sam's bed. So please be patience with us on updates and answering/returning texts, calls, and messages. We will be focused on what is most important right now. And I promise we will update with any big news or changes. I will leave you with a few pics. The first is how we spent the entire day yesterday, waiting. We shut the waiting room down. Then I will also post some pics of Sam post-op. If you are not comfortable seeing that, don't scroll down and look. I completely understand. But a lot of our followers are used to and like to see the pics so they can see the progress. He actually looks great :)






Tuesday, November 26, 2013

Back at the hotel :)

We are settled in our room back at the hotel. Sam is eating some Doritos and then going to take a nap. He did great last night! His neck was hurting him pretty bad, he had an iv in one side of his neck, and the other side had a bandage where they had used that vein in his neck for access during the cath. We gave him Tylenol around the clock and it did help some. When we saw Dr. Marx this morn he said even his older kids always said their neck really hurt when they would use that during the cath lab. Don't know if that made me feel better or worse, but at least I knew he wasn't just being whiny about something, it really was hurting! He had a good nap after we got up to the 8th floor yesterday, so it was probably 11:30 or midnight when he finally went to sleep. But after that he slept all night. 
Dr. Marx said they discussed him in their heart board meeting this morn, which is about 50 people consisting of drs and surgeons and all those involved in those teams, and they are all in agreement that this surgery is the best next step for Sam. So he is scheduled for surgery at 12:30 tomorrow. We have to be at the hospital at 11 am. I will update tomorrow to let you know they have started because I will be shocked if we start on time. Here are some pics...

His new book from his heart friend Georgiana ;)

Eating after the cath.

His new MU puzzle his nurse gave him for being good
 
Making his rounds waiting to be discharged today.