Finding the good in the bad...

Sam has had a good day, he has been so happy and smiling all day! We will echo tomorrow to make sure our heart function still looks good, and he will now be on three times a day diuretics instead of twice a day. Hopefully that will be all he needs to get him through for a while. We will need to watch him for several days to make sure this change will be enough. He had been fine on twice a day diuretics since friday and showed no sign of distress until this morning.
I handle the ups and downs around here pretty well, you just have to learn to go with the flow. Stressing out or crying about your situation is in no way going to change things, and will only emotionally drain you more (at least that is how I feel about it). But...I do on occasion have a day when I am worn out in all aspects, emotionally, physically, and mentally, and do get a little down...or more dissapointed than anything. I have always prayed for God to keep me humble in my situation and especially during our trials. Yes, we do live a very abnormal life that most people would look at and have great pity in an instant...but I don't have to look around too long or very far at all to be reminded of just how blessed we truly are. I am thankful that I can always see the good, and be grateful for all of our blessings even in the midst of our messiness....I am grateful that even though I literally have blisters on my feet because all my kid wants to do is walk the halls in his stroller that he is well enough to be off the monitor most of the day and in the halls, I am grateful that even though this was his 5th open-heart surgery that he has recovered beautifully and much quicker than anyone expected, I am grateful that even though we were born without a functioning left ventricle we now have one that is full size and fully functioning, I am grateful that we are not living in ICU, I am grateful that even though we are not flying home tomorrow, we hope to be home soon, some people here have no end in sight...most of all I am grateful that my hope is not in this world and I know no matter how long or hard our journey is here it will all be worth it when we are at His feet, I cannot wait to give him abundant and unending praise for all He has done for us! I am grateful that my trust, hope, love, peace, and promise are all in Jesus!