New Pictures

Sam has had a quiet couple of days. We have been slowing working him back up to his normal continual feeds, and he has been tolerating that fine. Tomorrow he should be able to return to his normal feedings and be able to take however much he wants to by mouth. His labs looked really good this morning, his sodium was back down and his blood levels are still normal, which tells us there is no bleeding in his belly. He is pretty off his schedule of sleep, staying up til 11 or 12 at night and not napping til 2 or 3, but when he sleeps he sleeps good. He is finally getting back to his old self laughing and playing and smiling! I stay busy with him all day now, but I am just glad to have my boy back!!

We have made some great friends during all our time spent in the hospital. Georgiana was born when we were here for our first trip to Boston and I love her and her family so much. Having her mom Angela here at the same time we are is such a blessing to me. She's not only like having a great friend living with you in the hospital, but she knows exactly how you feel and what your dealing with on a daily basis. As much as they love and care about what is going on with us here, no one at home could ever really understand, and I know that. I am grateful for the love they give us, but having the support of another heart mom helps you get through each day. They are planning to discharge Saturday! I am very excited for them, but will miss them terribly! 

Sam and Georgiana stolling the halls.

Sam listening to his own heart with one of his favorites, Christine!

Another wonderful family we have met here, the Murphys! This is Miss Katy who is waiting for a heart. BUT, she is waiting at home!! She had a short inpatient stay and is back to her old, adorable self. I pray she continues to get to wait (and soon receive) her heart at home enjoying the simple pleasures of toddler life with her mom, dad, and little brother patrick :)

We also received a wonderful gift from Mr. Aidan and his family today, Cars 2! Sam is so excited! Thanks so much to Aidan's mom, Sam, and grandma, Diane, for their kindness. We have the nicest friends here in Boston :)