So....I have some really good news that you have to be very careful talking about around here...I think we get to go home next week!!!! The thing that is hard for people to understand is how up in the air that statement can be even though things are great right now and we have good intentions of discharging soon. The fact is we are still tweaking drugs, and watching his belly for any more signs of trouble... All of which means we can plan on leaving next week, but that plan can change any minute. There have been plenty of families that make it to the lobby and have to come back up, or to the parking lot, etc. So I say with lots of excitement and a little hesitation, we will be home soon!
Sam will be coming home on oxygen, but that does not mean things didn't go as planned or that he isn't doing good. It just means that even though he had a great repair on his heart, his lungs are gonna take just a little longer to recover. He is not on much oxygen and I don't think he will be on it for very long, but for a child that has always needed it for some reason or another, we are going to let him tell us when he is ready to lose it. He will also not be allowed to have visitors or be around a lot of people for a couple of weeks. He is doing well, but he did just have a huge heart surgery and his immune system will take time to bounce back. It is also getting into flu and cold season, and at this point a simple cold or respiratory virus will land us back in the hospital. So this means no big thanksgiving or big birthday plans. We are ok with this and just glad we will spend them at home!
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